24 June 2022
Greater than 200 individuals from throughout Cheshire East got here collectively to have fun the lives of individuals with studying disabilities within the first massive nose to nose occasion since lockdown.
Individuals who use providers got here along with their households, carers, and the professionals they work with to speak about their expertise of providers together with what is nice and what must get higher.
The occasion was held on the primary day of Studying Incapacity Week, an annual marketing campaign organised by the charity Mencap, which goals to verify the world hears what life is like when you have a studying incapacity.
The convention was hosted by Cheshire East Council with help from the charity, David Lewis, which helps individuals with complicated wants together with studying disabilities and autism. Individuals have been requested:
- How would they prefer to see the previous acknowledged?
- What they consider present providers?
- What three key actions would they prefer to see tackled over the following 12 months?
Delegates heard a couple of venture to inform the person tales of individuals with studying disabilities who lived in Cheshire way back to the 1700s. ‘All Our Tales’ is a Nationwide Heritage-funded venture by the social enterprise, Snow Angels, which chronicles the lives of younger individuals with studying disabilities throughout World Battle I.
Highlights from the day included displays from Tom, co-chair of the Cheshire East Studying Incapacity Partnership and Claire, a self-advocate, choir performances from Springfield College and the David Lewis Centre, Jamie – a teenager speaking about his internship and plans for his future and the private tales from mother and father and carers.
Glyn Withenshaw, whose 33-year-old son Jon has complicated wants together with epilepsy, shared his life as a carer, within the type of a poem referred to as ‘Jon’s Life – Half One’ I by no means supposed to be my son’s carer
Typically I’m wondering if life may very well be fairer
A accident, divine intervention
If solely there had been some form of prevention
As Jon developed on a backwards path
Hosts of specialists started to prevail
Exams, assessments and conferences galore
Epilepsy and no speech appeared to be on the core
Non-development the order of the day
So, I made a decision it should be time to wish
Mornings, and mums gathered for the traditional faculty run
We watched silently – exclusion’s no enjoyable
And the taxi arrives and Jon’s on his means
An extended journey to evaluation faculty far-off
The prognosis it left us feeling fairly numb
Little hope for the long run and what’s to return
A particular wants faculty was how he was labelled
Would Jon’s life grow to be slightly extra steady
The particular faculty – so calm and undemanding
Guiding us by means of our points with nice understanding
And Jon turns into an grownup however solely in age
His future and outcomes so troublesome to gauge
The fixed ideas of Jon’s future care
What’s going to occur when I’m not there?
Councillor Jill Rhodes, chair of Cheshire East Council’s adults and well being committee, mentioned: “Our imaginative and prescient is that each one residents reside a wholesome, pleased and impartial life with alternative and management over the care that they obtain.
“It’s so necessary that we recognise the previous, applaud the great issues we’re doing proper now and listen to straight from individuals with studying disabilities and those that help them about how we will enhance.
“It was beautiful to fulfill everybody in particular person following the pandemic, have fun the wealth of various skills amongst our residents, in addition to acknowledging the significance of taking care of those that take care of them.”
John Heritage, chief government of the charity, David Lewis, mentioned: “I used to be overwhelmed by the highly effective tales we heard in the course of the occasion and the significance of providers like ours that work so laborious to present independence and help to individuals.”
For extra data on providers that help individuals with studying disabilities go to the educational incapacity Livewell web page.